Autism Emergency Preparation: Families With Autistic Children

Autism Emergency Preparation: Families With Autistic Children

I really needed to write this article to remind families with autistic and special needs children that we can fall under crisis at any time. With the type of lives that we live, we need to heed the warning to be prepared!

As a mother of children with autism, the most important thing in my life is being consistent and utilizing our organizational skills. God forbid anything happen to us parents who are the managers of our children. We need to think about these type of things in order to ensure the safety and care of our children with ASD.

The first thing I would like you to do is sit down with a pen and paper or a computer and get organized. Write down your child’s daily routine – but this time – write down the needs of that routine if you had no electricity, or if you didn’t have other necessities, like running water.

When you walk through your daily routine find out what runs on batteries and what requires a plugin. Does anyone know how to work the machines your children use? From feeding tubes to breathing machines, you need to write down detailed instructions on how to use these items. If you have the instruction manual, then place it in a plastic bag and put bright red tape on the outside of the bag and place it on the machine that it belongs to. Make sure it is visible to anyone trying to work the machinery.

Being prepared will help all people who might be in contact with your child during an emergency. They can understand how to care for your child because you gave your child a voice. This can apply to HCA’s, CNA’s, RN’s, healthcare workers, personal care workers, ABA therapists and daycares.

Pack A To-Go Bag

Disaster can happen at any moment in many different ways. So I have compiled a list of things to help you make your own list because all our children need different thing.

Make sure all these items are available in back-packs. These will be your to-go bags so that in the time of emergency, if you need to evacuate, you will be able to just grab and go. We keep ours just inside our garage door and my autistic children’s bags in my car at all times. Really meditate on what you will need and please adjust if you don’t need some of these items.

Packing List:

legal paperwork
Prescription or bottle of prescription – 7 days worth.
List of all medication: names of medication, dose, frequency, and the name of the prescribing doctor. Applesauce if needed to administer.
Copies of medical papers, insurance cards and power of attorney.
List of phone contacts one at least outside of state.

Batteries
Feeding tube with a backup battery.
Written operational instructions to all equipment. Get trained on manual infusion techniques in case of a power outage and write it down in case you are injured in any way.
Extra batteries for motorized wheelchairs.
Patch kit for tires or fix a flat, store the manual to the motorized wheelchair and extra tools.
Flashlights
Radio
Make sure to pack all necessary chargers.

Healthcare
All grooming supplies
Toothbrush/toothpaste.
Washcloth, towel.
Soap/rinse-free shampoo.
Clothes
3 pairs of pants ,underwear, shirt, socks.
Diapers, liners, baby wipes, pull-ups, chuck pads, gloves.
Detailed instructions on your child’s routine of their care.

Food
5 gallons of water per person.
Straws, utensils, bowls.
Protective coverings.
Cans of Ensure or protein drinks – high calorie.
3 meals a day for 3 days. Pack the kids favorite things to eat that are non-perishable.
Items
Yard gate for children who wander.
One hundred dollars in one’s .
Child’s favorite things like: movies, i-pads, blankets, stuffed animals, or anything that will help them get through the crisis.

Then go to www.doh.wa.gov for an emergency supplies list for all person of your household and please get prepared!
If you don’t live in Washington then go to your State DOH.gov and ask for a resource guide.

Visit our website:
www.normallifeinc.com
Another helpful video:

facebook group: #autismarmy
Twitter: @AIWIanormallife
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